Abstract

< 0.00001). Consumers agreed that genetic testing should be promoted (91.4%), made available (100%), better funded (94.2%), and offered to all pregnant women (81.6%). The preferred learning modality about genetics was internet sites (62.7%) followed by talks/presentations (30.8%). Benefits of genetic testing, reported in qualitative responses, included the potential for additional information to promote personal control and improve healthcare. Perceived concerns included ethical implications (including privacy and discrimination), and current limitations of science, knowledge and/or practice. This study demonstrates that even knowledgeable consumers have little familiarity with genetic medicine but are optimistic about its potential benefits. Ethical concerns, particularly concerns regarding genetic discrimination should inform legislation and policy. Consumers are supportive of online resources in increasing genomic literacy.

Authors	Wallingford, Courtney K; Cutler, Katrina; Istiko, Satrio Nindyo; Fowles, Lindsay F; Lamb, Rachel; Bean, Jessica; Healy, Louise; Hondow, Gary; Pratt, Gregory; Vidgen, Miranda E; Waddell, Nicola; Evans, Erin; Bunker, David; McInerney-Leo, Aideen M
Journal	FRONTIERS IN GENETICS
Pages	537743
Volume	11
Date	1/10/2020
Grant ID
Funding Body	Queensland Genomics Health Alliance, Queensland Health, Queensland Government
URL	http://www.ncbi.nlm.nih.gov/pubmed/?term=10.3389/fgene.2020.537743
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